Friday, April 28, 2017

A tribute to Leo

Every Thursday come rain or shine there was one thing that British schoolchildren looked forward to and even though it is online only today, it is the same and that is the children's comic, the Beano that mirrored chunks of your world with stories about home and school life together with stories from far away lands.
 This is a good example as any of a pre 1990's edition with Dennis the arch menace, his dog, Gnasher up to no good with 'soppy' Walter not that Dennis and his chums didn't get their come-uppance by "the powers that be" which you could say was the message although we all laughed at them.
This comic had a team of cartoonists of which one instrumental member Leo Baxendale died on Thursday, draw the Bash Street Kids and Minnie The Minx who remain even very popular characters. R.I.P Leo.

Wednesday, April 26, 2017

Welcome to my dorm

A prize of a packet of Smarties for anyway sufficiently awake to spot anything different this week when you tuned in.
Originally when I made this place it was with a very real difference rather like for differing reasons my Big Blog was too compared to "The World of Joanne_chan" but because my life has changed both blogs needed work on them and having gotten the Big Blog sorted for more grown up concerns such as Current Affairs and anything that isn't really  apart of my more regular middly/littles life my attention moved to here as I felt it was a bit messy in places and while more Ouchie things were originally what it was set up to talk about, really it and me have moved on.
This place is called Joanne's Dorm because it's the place I rest, think, if I'm naughty get a spanking and sleep in rather than the rooms where I study, play and be with other people having adventures, following my interests and hobbies talking about that side of little/middle life.
One thing I do find difficult is being able to get a good sense of where my emotions and feelings are cos I tend to blank them out so I don't actually assess how I'm feeling processing them and from that learning from them.
This influences what in the wider sense is my attitude and behavioural responses to situations happens to be so writing here about them helps me do this, taking ownership of them and from that helping me grow up more cos at times my thoughts are more magical or expecting others to solve for me rather than about help me learn to deal with them by myself.
That's what people like my Caregiver try to do too although it is hard when like me you get things jumbled up as they happen so I understand as much as I can about what I did (or failed to prevent) and learn from those mistakes.
That's why of late there's been more writing around this topic not that there will not be any mention of spanking because we all know that is part of my life, to help move me past those very same attitudes and  behaviours I spoke of because they come about from me acting on them and its role is to deliver swift painful consequences so I learn as I am increasingly doing not to repeat them while I also get the guidance to change them other more mature responses to those situations.
What you can say is running through this is really this blog is a place by talking how I feel, what did and the necessary discipline it is all a part of the process of helping someone like me who does have very real limits on our ability and potential to nontheless learn to grow up mentally using our abilities with proper direction so we do learn to be more mature and responsible even though we are and will in many ways remain very much younger than our years and child-like.

*This is where I'll do my growing up*

Wednesday, April 19, 2017

Feeling good

Post Easter entry after being 'on the nom' , posting off that form after going for a bit of walk today and seeing someone said they were looking at good or positive stories given how things are in  the world right now.


You might wonder about this image but the initiated do know, while it's not something I'd wear all the the time, I have been know to wear short frilly skirts and t shirts which is super brave by my standards even been know to hide in sweaters in the midday sun before now so like I'm a bit braver than you'd think (or for that matter I'd necessarily credit myself with).
That has a lot to do with not feeling for a long time comfortable in my own skin or comfortable about how my disabilities effect my life and how other peoples attempts to 'normalize' me really messed my head up, not helping in creating a mindset very of being somebody else's version of me rather learning how to handling just being myself better.
Learning to open up about this part of my past is helping me not just identify what went wrong and deal properly with the emotions but to move on having actually learned the lessons rather than being stuck in that past.
Dealing with that form brought a lot of things about me to a head because the nature of it is really quite negative  so I would sooner now work with what I can do even with help, even if by necessity I'm treated as the adult-child I am, so I have the experiences that don't just build better, more positive memories from social interactions but also help move me on to contribute more to the lives of others.

Friday, April 14, 2017

The disabled week

It's two weeks this Friday so today I'm making a second day in the week post which is as well as I have been very busy this week.



One thing I have been doing is working on copying using the dbPoweramp program from Illustrate, a number  of cds to the micro sd cards used by new music player that I hadn't gotten around to so for example I have a complete set of Adele's cds and studio recordings by Genesis stored with a full set of original album art.
I think the bigger thing though is I have been getting more to grips with feeling at one with who I am, not least the way those disabilities make me and my life the way it is given much of the way encouraged when I was younger amounted to throwing a cloak over the myriad of ways everyday life is effected as if it was separate, embarrassing thing.
What passed as coping strategies encouraged amounted to an denial externally for the benefit of those who didn't want anything outside of a brave doing so well for all that girl script for me and internally not taking ownership of how my disabilities had left me and the things I need to do that are different  to manage them as part of living, part of the life skills that never happened.
Things such as reconciling the acceptance of how your life is impacted with the kind of attitude that makes a life even if it involves more support  and oversight being less of a daily chore and more about living.   Something then that's neither about denial or self limiting opportunities, having abilities mixed in that can be used while accepting the disabilities that cannot be ignored.
Much of that is something I've had to do as part of periodic reassessment of my Capability Of Work (WCA 50) for my Employment and Support Allowance income benefit claim answering a barrage of questions although last time they just saw my medical evidence and awarded it at top rate.
I'd like to end this entry by thanking my BFF Lucy for her support and encouragement over this period.
x

Wednesday, April 12, 2017

Being messed about

One thing never denied on any blog post anywhere is that I have a  that good number of disabilities both interact and overlap with each other which can be hard for some who have only one disability be it minor or majorly impact on them to accept as it can be for those who may not have any (at least recognized).
This tends to mean you need to consider the whole when you and as I'm meant to as well consider how to manage  my conditions, what I can do and equally what I may not be.
This sort of scenario usually gets more complicated when other people with their own ideas and agendas  start to come in their ideas around how best to manage you or what it is they think you can manage.
One area is around me and work. I could of said employment but the difference between the two is work is a thing you do either for yourself or for another and employment is when that work is given in exchange for money in the form of wages you are said to be employed.
Not surprisingly as as many of my disabilities came from birth or childhood, I have had a number of stops and starts when it's come to holding down jobs or looking and receiving specialized training and assistance although unfortunately one main condition stemmed from  an industrial injury in work.
For a considerable period officially I had been regarded as so disabled  that even with training and assistance I would not be able to hold a position down in open employment and in this country at least 'sheltered employment' making things for govermnent and business with taxpayers support to provide employment if you couldn't work commercially on the open jobs market has been removed.
As in most social democracies, there have been payments for those of us who this wasn't possible but it was reorganized some years back with the view more people were capable (and ignoring employer side barriers to employment) so after a faff that had one form completed and been sent to a medical where the person isn't medically qualified to judge you leading to examples of people found fit to work who died days later from medical conditions but then realizing literally last minute from my medical records I couldn't be assisted into employment anytime soon, this was accepted.
This week I'm getting another of these accepted as unfit for purpose by experts apart from government Work Capability Assessments filled out and we'll see how this goes.
Strangely enough my conditions are  seen as automatic exemption from retesting but buried in the small print of an announcement made by a Minister, they can't do this until they've updated their computer systems which won't happen to the end of this year at the earliest.
This means they're retesting people who by there own admission shouldn't be because it your conditions cannot change over time.
This hasn't helped me stay calm or do anything positive to my quality of life. I'm just glad my BFF is helping to steady my nerves.


Wednesday, April 5, 2017

Discipline vs Punishment

This is a bit late in completion as I'm very poorly but anyway it needs to done.
The great thing about words is people not only argue about the appropriateness of them but often about the exact means as there are many in English that a very similar but not completely the same.
 Miss Kitty makes a very good point.

A punishment is the imposition of an undesirable or unpleasant outcome upon a group or individual, meted out by an authority—in contexts ranging from child discipline to criminal law—as a response and deterrent to a particular action or behaviour that is deemed undesirable or unacceptable. Of itself it doesn't include guidance, being essentially  reactive - you break a window, you receive legal sanctions for criminal damage such as a fine or community order.
To discipline implies active steps around teaching and training appropriate conduct, attitude and behaviour but when a rule is broken, a sanction is applied to deter the person from repeating.  This can and for me does include forfeits, lines and spanking.