It's the weekend so I'm sat here working on today's entry after thinking over some of the weeks experiences.
I think the first thing is last weekend's written work showed I am capable of doing something I have agreed to to a very good standard, being prepared to work with my conditions and the emotions that build up in me.
Another thing showed how not respecting how certain of my conditions are creates a situation where I feel very much out of things, unable to use those same abilities in what was on the face of it a less demanding task.
I have as some of you know from being with me severe problems with short-term memory, concentration and find noises very distressing and I was in the process of writing a Thank You card to a relative where I have people dashing all around me looking for things, shouting to each other without making it plain who it is they are speaking to, then trying to ask for information that isn't relevant at that point.
I can't hear myself think, I am struggling to remember what the sentence is even I'm trying to write, having to cross out one word as I got muddled up and what I did write wasn't what I wanted to convey even. I felt embarrassed to hand it over to the person who was going out to mail it even.
This was so unneeded and that kind of thing when I'm out at the check outs in stores paying for things and so on just gets to a point I just 'freeze over' and 'shut down'.
On the other hand where on Friday I found a micro sd card that contained sixty odd music albums that gone awl, where I the past I'd of been getting super anxious and stroppy I just calmly checked my back ups for the artists I had recordings by on the card, identified them and got on with the job of ordering a replacement to put them all back on again maybe taking advantage of its bigger capacity to combine it with another.
In that way I'm getting at handling my conditions and how they affect me but you do to a greater extent than a good many others need to bear them in mind even if that other example is one that perhaps isn't fair to expect anyone to work around never mid someone like me.
Monday, March 20, 2017
Wednesday, March 15, 2017
A leopard can change its spots
It is easy to get into a mindset of thinking about those things in your life that may not be going so well or even into comparing how you are doing compared to others but that's a habit which so easily leads to you beating yourself up.
Like for instance we may only know of what another person really is doing from what it is they've shared with us which may well be selective, missing out any mess ups and only as they feel it is so really those comparisons may not be too accurate.
The other side of this is we may be understating our own abilities, using a very high baseline to judge them by or be so used to perceiving our failure that we automatically feel we have when maybe we've done okay really.
This came to me on Sunday where I had spent this weeks Study Weekend working on a longform part of guide working with a person I hadn't collaborated with before with no indication of the exact format and structure they were working for even.
Let's say the absence of that usually gets me into tailspinning territory as I stare into the blank page on my non microsoft office suite so I type a few headings and eventually find one to start typing to and slowly work may way to the final one.
I review it and send it to the person I am working with with not to say it's not perfect but it's like the best I can do here thinking to myself it's not really good enough, maybe they'll do the electronic equivalent of tearing it up even.
Imagine then you get a message to say although it may need the odd change, they really like it that even they say it's a pleasure to read something so well written, that actually I'd structured it similar to their own section.
Really, Jo that boarding school girl severely dyslexic actually manages to pull it off when she was feeling like walking the corridors thinking she'd failed!
I think the point here is I grew up so much with the idea I was no good at this that I came to believe it didn't matter what I did or anyone said they could help me, that I couldn't change that outcome.
I changed the outcome cos I actually believed in it enough to do the work using techniques that I had learned and was prepared to spend my time on learning and learning to trust people who were prepared to help me make those changes.
Monday, March 13, 2017
Wrapped Paw
First off thanks Tracy and Sam R for your birthday greetings and no nothing Sanrio came this year although I can always raid the kitty for something or other!
This weekend was a kind of study weekend spend working on a collaborative project which was fun cos blank paper or areas on a word processor page usually make things harder for me to get started so I put up some subjected headings and I found one bit to get started on and as if by magic, the rest in time came and was appreciated by the person I sent it to.
Expect the unexpected as in with the birthday presents was something different
Yes, we had white and grey school socks, harlequin and pastel fashion ones and even cute fashion ankle socks before now.
Introducing now black long soft school socks as bought by my folks!
Maybe apart from me being a bit more grown up they're getting more to grips with what I feel okay in or like to play with which is a good thing imho.
This weekend was a kind of study weekend spend working on a collaborative project which was fun cos blank paper or areas on a word processor page usually make things harder for me to get started so I put up some subjected headings and I found one bit to get started on and as if by magic, the rest in time came and was appreciated by the person I sent it to.
Expect the unexpected as in with the birthday presents was something different
Yes, we had white and grey school socks, harlequin and pastel fashion ones and even cute fashion ankle socks before now.
Introducing now black long soft school socks as bought by my folks!
Maybe apart from me being a bit more grown up they're getting more to grips with what I feel okay in or like to play with which is a good thing imho.
Wednesday, March 8, 2017
Unexpected gifts
Monday, it had to be said was different not least for being my birthday the bulk of which is written about elsewhere really but in a number of ways, one totally unpredictably this does seem on reflection to have felt different.
Generally birthdays and me are not particularly grown up affairs both from the way in which I approach them with a very child-like sense of anticipation and excitement, the sort that keeps you awake and also from the point that what I get in the way of presents is also more child-like to the point this year of including a girls colouring book. We go out but it feels more like taking a child out for its birthday treat minus the balloons and pink icing cake, overseen by parents cos we're not nor never have been exactly equals.
The initiated know the issues within the immediate family, not least my treated as not a relativeness by my younger brother and indeed when he came at a time totally of his choosing and for a matter of minutes although he was last here only just under three months ago being totally ignored as usual.
The other thing was my older brother came, who hadn't been since November last so if you work that out meant both we'd not seen him for Christmas AND his Christmas gifts (and his to us) hadn't been exchanged!
Well, he'd been invited to lunch and was supposed to have arrived around Eleven but had turned up at half Ten instead with just myself in the house thinking "crumbs what are going to talk about" as unfortunately he's the type of male that talks work and technical stuff that frankly bores the pants off me.
Anyway he comes in and it's obvious from the get go he wants to talk and I really mean talk as if it's been bottled up inside of him for like ages so I sit opposite him, listening more or less three parts to every one contribution, remembering to keep some eye contact.
It's obvious he's the adult here from how he addresses me, more like a teen in the room in many ways reminiscent of how things were when he lived with us as he had authority over me (and my younger brother) when they were not in and he leaps into a conversation that was in part quite a revelation and actually a conversation about in the wider sense, discipline.
He opens the topic with an apology for mentioning it but starts an ensconced discussion of my brothers attitude to both people in general, to being a part of a family and to how I am treated, parts of which I am familiar with what he at length eloquently described as his childish lack of maturity-going to sulks for several weeks, refusing to help when people need it, preferring to make kits all weekend instead, looking for arguments with anybody who doesn't just meet his wants and so on. He says it's because he's not grown up.
He pauses, talking to me about what I think about that and how I would deal with such situations as if he actually cares about my attitudes and behaviour almost like sticking a thermometer in to take a reading as he resumes.
Then he drops a bombshell that part explained part of a visit late last year by my younger brother and his partner where redacting the substance, my younger brother had really lambasted her on a well known social media site and this had gone back and forth with increasing anger and bitterness in full public view with him mentioned.
He asks me what I think of this, he tells me how upset and angry about it he was that he intervened insisting they stopped and removed it all before telephoning each scolding them especially my younger brother, making him apologize not just to him but to his partner making it plain the consequences if either of them do it again.
I say in quirky humorous way "That's very Big Brother" and he just laughs as he realizes something.
He's reconnected to a more tween-like me as an authority figure who isn't afraid to discipline having set out what he expects and most people do.
The most unexpected gift of all turns out to be the return of him and his fair minded firmness in my life, the one who would say NO to Jo and did spank me growing up.
This is one awesome present.
Friday, March 3, 2017
Sports
Miss Kitty and I go back quite a long time actually not that I was much good at tennis or badminton on few times I did play it at high school preferring ball games or swimming which is an equalizer when you're disabled which was why I went for a period to a disabled swimming club apart from understanding company.
The instructors were super good at understanding you, your needs encouraging you to try swimming different ways to your fullest abilities and unlike regular pools our water was warmer.
When I hurt my upper right arm in my mid teens, physical therapy in the water was part of how I was helped to regain strength and confidence in using it.
The instructors were super good at understanding you, your needs encouraging you to try swimming different ways to your fullest abilities and unlike regular pools our water was warmer.
When I hurt my upper right arm in my mid teens, physical therapy in the water was part of how I was helped to regain strength and confidence in using it.
Wednesday, March 1, 2017
Online bullying
I am sat her reflecting on a couple of things with a tenuous connection that have had quite an emotional impact on me.
One happens to be the online encouragement of a person from another Tumblr community to commit suicide for what was seen as a slight on another communities member. The person concerned was a young Kidhearted member as I was until an incident lead to us parting who has a number of mental health and developmental disabilities and as such I always kept an eye out for them
This is being condoned by a teen mod of the other Tumblr community.
Ya know this takes me back to English Literature, would of been about aged fifteen reading William Golding's The Lord of The Flies where a group of well educated English boys bereft of adult authority due to a crash separate into groups in a downward spiral from mean-spiritness to outright savagery.
My problems with all this drama start with inappropriate moral equivalency in putting offence caused by a ill considered comment (and god knows we all can do it) with actually encouraging a person to take their lives after taunting them.
They are two different things.
The other is the lack of tolerance which is not about agreeing with somebody but respecting the right of an other to hold an opinion even one most would consider ill judged that soon leads into mean spiritedness.
This so often manifests itself in NIA banners or Non Interaction Allowed where people from one group are told because they either belong to a community on Tumblr or interact with one they don't like you cannot 'like', reblog from or comment from another because one says the other is wrong.
It means since what happened with me I cannot even post message of support for this person subject to the sick suicide baiting because their community bans ours (although we ban none) from posting to them.
I am waiting for certain communities to grow up and at least agree to disagree on some topics and work together on keeping people really safe.
One happens to be the online encouragement of a person from another Tumblr community to commit suicide for what was seen as a slight on another communities member. The person concerned was a young Kidhearted member as I was until an incident lead to us parting who has a number of mental health and developmental disabilities and as such I always kept an eye out for them
This is being condoned by a teen mod of the other Tumblr community.
Ya know this takes me back to English Literature, would of been about aged fifteen reading William Golding's The Lord of The Flies where a group of well educated English boys bereft of adult authority due to a crash separate into groups in a downward spiral from mean-spiritness to outright savagery.
My problems with all this drama start with inappropriate moral equivalency in putting offence caused by a ill considered comment (and god knows we all can do it) with actually encouraging a person to take their lives after taunting them.
They are two different things.
The other is the lack of tolerance which is not about agreeing with somebody but respecting the right of an other to hold an opinion even one most would consider ill judged that soon leads into mean spiritedness.
This so often manifests itself in NIA banners or Non Interaction Allowed where people from one group are told because they either belong to a community on Tumblr or interact with one they don't like you cannot 'like', reblog from or comment from another because one says the other is wrong.
It means since what happened with me I cannot even post message of support for this person subject to the sick suicide baiting because their community bans ours (although we ban none) from posting to them.
I am waiting for certain communities to grow up and at least agree to disagree on some topics and work together on keeping people really safe.
Wednesday, February 22, 2017
What I learned during Winter Littles Camp 2017
I've been away for a number of days in connection with that all encumbering part of my life that I don't really need to write much more about as the account of the six days away can be found Here.
There are some reflections I do feel the need to talk about about on here one is learning to be grateful for what people freely do for you such as seeing I was struggling at one railway station a couple kindly offered to help carry my luggage and even checked when I got to the end of the stairwell I was all right who I no idea of. I thanked them profusely for caring so much and acting on it.
There's the people who kept an eye on me as I was feeling a little homesick where I stayed, spending time with and the friend who knowing the sort of fiction I like, gave me a cherished book from their collection which they sure didn't have to and to which I didn't expect at all after giving them a dolly I thought they'd love.
Then there is a friend of mine who kindly put me up, offering a cooked meal and a lift to the train coming back completely out of the blue, seeing I was on the right platform for my train to come in. Even when I found I simply could not eat the whole of their home made and cooked meal rather than just saying it was very nice-and it was was absolutely lovely- from nowhere I found myself apologizing to them for not finishing my meal clearly feeling contrite.
These acts of kindness really moved me but whereas in the past I'd of blocked out my emotions I thanked them properly for all those things they did not have to do,that I have no right to expect nor demand expressing my gratitude, revealing my sense of being humbled openly.
Another thing was around making sure I stayed within contact while meeting one person after a rail journey, letting them know it was doing and when I would be seeing them which as you may recall resulted in a lecture and spanking last time which I did.
As well I was asked to keep it on while they were going out of the house for a short period later on because they may be delayed and I just complied with the request with no back chat which showed I had learned from last times experiences.
While a few people needed a reminder to tidy up and put their plates in the dishwasher while we were away, I did not and indeed that I had was held up as an example for others to follow.
I think the one thing I can take away from this period is while I may have some distance to go and the potential to relapse, the six days did show I was moving on, being responsible and how I'm being helped to change is really helping me.
There are some reflections I do feel the need to talk about about on here one is learning to be grateful for what people freely do for you such as seeing I was struggling at one railway station a couple kindly offered to help carry my luggage and even checked when I got to the end of the stairwell I was all right who I no idea of. I thanked them profusely for caring so much and acting on it.
There's the people who kept an eye on me as I was feeling a little homesick where I stayed, spending time with and the friend who knowing the sort of fiction I like, gave me a cherished book from their collection which they sure didn't have to and to which I didn't expect at all after giving them a dolly I thought they'd love.
Then there is a friend of mine who kindly put me up, offering a cooked meal and a lift to the train coming back completely out of the blue, seeing I was on the right platform for my train to come in. Even when I found I simply could not eat the whole of their home made and cooked meal rather than just saying it was very nice-and it was was absolutely lovely- from nowhere I found myself apologizing to them for not finishing my meal clearly feeling contrite.
These acts of kindness really moved me but whereas in the past I'd of blocked out my emotions I thanked them properly for all those things they did not have to do,that I have no right to expect nor demand expressing my gratitude, revealing my sense of being humbled openly.
Another thing was around making sure I stayed within contact while meeting one person after a rail journey, letting them know it was doing and when I would be seeing them which as you may recall resulted in a lecture and spanking last time which I did.
As well I was asked to keep it on while they were going out of the house for a short period later on because they may be delayed and I just complied with the request with no back chat which showed I had learned from last times experiences.
While a few people needed a reminder to tidy up and put their plates in the dishwasher while we were away, I did not and indeed that I had was held up as an example for others to follow.
I think the one thing I can take away from this period is while I may have some distance to go and the potential to relapse, the six days did show I was moving on, being responsible and how I'm being helped to change is really helping me.
Labels:
age regression,
disability,
discipline,
guidance,
maturity
Subscribe to:
Posts (Atom)




